Monday, December 29, 2008

Today Morgan Kate had her eye exam. It happened to fall at the same time as one of her feedings. Argh! So we packed the OG tube, 30 cc syringe, 5 cc syringe, tape, and stethoscope. We also packed a bottle just in case Morgan Kate was feely froggy. Thank goodness she was feeling froggy and took the entire bottle. Yahoo!

Good news! Morgan Kate's eye appointment went very well, except for the fact that Travis and I had to hear our sweet baby scream in pain. Oh, it was awful. However, Dr. C is terrific and tried to be quick. He said that her eyes have completely matured and are fully developed. He also said there is no sign of ROP. Awesome news! He no longer needs to see her, as he is a retina specialist, but she will need to see a pediatric opthamologist for the first few years of her life. Premature babies have a higher incidence of being nearsighted or cross-eyed, so these visits will be a preventative measure. We will not see this doctor until April. We are both so thankful that things went well today. We had a really good feeling about it, but then again you never really know. Needless to say, the news was a much needed relief.

Morgan Kate did a terrific job with the bottle at the eye doctor, but feeding has gotten progressively worse all day. She only took half of her bottle earlier and tonight I basically had to force it down. She has also been pretty fussy. I'm not sure if her ear is bothering her or if her stomach is hurting because of the antibiotic. We have a doctor's appointment first thing in the morning...hopefully we can figure it out.

Before Morgan Kate ever came home I briefly mentioned one night in a post about RSV. I never really talked about it or went into detail. At least I don't think so anyway. My brain is not nearly what it used to be and a lot of things run together. Anyway, RSV stands for
respiratory syncytial virus. I had never heard of RSV before our NICU days. However, I learned very quickly that it is something we MUST avoid. In adults, RSV is much like a simple cold, but in infants, especially premature infants or infants with other issues, it can be much more serious and even fatal. If Morgan Kate were to get RSV she would be back in the hospital and on a ventilator. Since Morgan Kate was born prematurely and has chronic lung disease she receives an Synagis injection each month during the RSV season (November-April). This Synagis injection helps prevent RSV and she will get these injections until she is at least two years of age. The reason I mention all of this tonight is because 1.) it's RSV season and Morgan Kate's lungs are extremely weak and 2.) a "fellow blogger" known as "MckMama" is dealing with RSV at this very moment and it scares me to death. This particular mom has her own blog which I keep up with daily and it's absolutely amazing. I don't know her personally, we have never talked, but she seems like such a great person. She dealt with some extremely scary things while pregnant and now she is having to deal with this. Bless her heart!  Her youngest child, Stellan is about eight weeks old (maybe a little older) and was just diagnosed with RSV. This weekend it started as a cold, little bit of mucus, runny nose and so forth. Today he was having an extremely hard time breathing, his oxygen sats were below where they needed to be and just recently he was admitted to the pediatric ICU. He is on the verge of needing the ventilator. It scares me to death because he is healthy and nothing is wrong with his lungs and he is now in the ICU. This is something that Morgan Kate HAS to avoid. It kills me that we can't share her with all of our wonderful family and friends, but at the same time I realize her health is our top priority and she cannot afford to get RSV. Tonight I will be praying for baby Stellan. I pray that he will be healed and he will recover. I also pray that his parents have strength and courage. Scary, scary! You can check out their site by clicking on this image:




On a much, much lighter note please take a look at the picture below.


Now, you may be wondering, "What is this?" or "Why is Heather showing us this?" Well, around 10pm last night I was drawing up some meds for Morgan Kate in a syringe. The syringe was not cooperating and I noticed that it shot some of the medicine into the air. Okay, no big deal. I chuckled a little. (It doesn't take much to amuse me.) I saw some of the medicine fall on the island and thought nothing more of it. I simply cleaned it up and told Travis what had happened. He started laughing and said, "Did you check the ceiling?" The ceiling? Why would I check the ceiling? I walked back in the kitchen and looked up. There it was, amoxicillin all over our ceiling. Oh, and the best part...it will not come off. Apparently, Travis had an experience similar to this the night before, but he missed the ceiling by a few inches.

9 comments:

Anonymous said...

Megan is on the same antibiotic. The first time around it did bother her tummy. I haven't noticed as much this time. She loves to take her medicine...it must taste really good...like bubble gum.

Keith

Jill said...

if you have any spackle (like you use to fill in holes in your walls) take some on your finger..and dab it on all the spots....they also make a "pop corn" kit to repair ceilings...or you could just leave it for memories!!

I miss you guys!! I left your mom an email earlier about how proud I am of you guys!!

Anonymous said...

Hi Heather! So glad to hear you guys are doing well and that MK had a wonderful first Christmas at home and that you were able to spoil her rotten. Sorry to hear about the ear infection and I will be praying for that. AND, I am sorry (and shocked) to hear about Aunt Ann. I will definitely be thinking of Uncle Jimmy, Jaime, and Lucy during this time. I'm so sorry!!! I love you very much! Love, Julie

Anonymous said...

Hey Heather! Praise the Lord that Morgan Kate's eyes are developing normally! What a blessing! I know it will be difficult for you not to be at Ann's funeral today. I am praying for all of you. Continue to seek His word for strength to get through each day. I love you! Aunt Terry

Anonymous said...

I am so glad to hear that Morgan Kate had a GREAT Christmas. I must say, I never doubted that it would be a big one for her. I am sorry to hear about your aunt. I will keep you all in my prayers.

My twins had the RSV shots...I felt much better knowing we and Dr. G did all we could to prevent the illness. Don't let the ear infection get you down. Some babies have small ear canals, the fluid gets in there and can't get out. I hope you had a great visit this morning.

love,
Wendy S.

Deni said...

You aren't the only one terrified of RSV. Parker gets his Synagis shots too. I agree, its so scary to see a full term baby get this sick and now worry about your preemie. Glad there is no ROP!

Hang in there! You're doing an awesome job!

Anonymous said...

I am so thankful of Morgan Kate's good eye report from her M.D. We will continue to pray for her healing and that no germs will come to her. I know it may be hard for your friends or family to understand that you and Travis are not able to share your precious gift with them, but know that you and Travis are doing what you need to do to protect your baby girl and right now that is all that matters. The moment this little one entered yours and Travis' life the instinct to love, protect, provide for, bring joy to, comfort, teach and to nurture came upon both of you and burst into yours and Travis' hearts. This is what happens when you become a mommy and a daddy and it is a wonderful feeling and it stays with you until eternity. It is no doubt that children are a gift from God and everyday as a mommy and daddy is a lesson in love. Thanks be to God for His indescribable gift. 2Corinthians 9:15
It is not always easy to be a mommy and daddy because sometimes you feel you wear your heart on the outside of your body and every single thing that hurts or threatens your child tears at your heart and on the other hand, every hug or smile swells your heart with more and more love each day.
Cast all your cares/anxiety on Him because He cares for you. I Peter 5:7. The peace of God which transcends all understanding will guard your heart and minds in Christ Jesus. Phillippians 4: 6-7 Be encouraged....You and Travis are doing a FABULOUS job.
You will have lots of memories especially the one on the ceiling. We love and pray daily for you, Travis and Morgan Kate. Until we see you, Travis and Morgan Kate again....HUGS and KISSES we send.....

Love,

Aunt Jan and MaMa

Anonymous said...

What WONDERFUL news about her eyes! You and your family have been in my thoughts all day. We love you, Kelly & Tommy
PS. It's good to have those things happen every once in a while to keep ya laughing, especially when it happens to the both of you:)...just adding some character to your ceiling.

Justin and Jessica Jones said...

Hey Heather,
We are dealing with a double ear infection now with Micah. I would put my kids in a bubble all the time if I could to keep them out of the germy world, so I think you are very wise to limit vistors for MK considering all of the complications with her being a preemie. You are doing what any good mom would do. I hope you are taking care of Mommy too...call me if you want/need to get out of the house for a little grown-up girl fun. I need a break from my wonderful, adorable, fantastic kids. :)
Jessica