Today we had our first appointment with Dr. B, the pulmonologist. My dad came over early this morning to help me with Morgan Kate and all of her "luggage". We arrived early to fill out paperwork and all of that good stuff. I left Daddy and Morgan Kate in the car while I went to sign in. We have been told time and time again not to expose Morgan Kate to other people, especially children. Therefore, I thought it would be best to keep her in the car and bring her in once they were ready. This has been the "protocol" for all of her other appointments. Well, apparently the "nice" lady I spoke with wasn't familiar with our "protocol" and didn't really care either. Here is a snippet of our conversation:
Me: Good morning. I am here for my daughter's appointment. She is a preemie and has chronic lung disease and we aren't supposed to expose her to others. So, would it be okay for us to sit in the car and you call us when you are ready?
"Nice " Lady: Ma'am, everyone here is a preemie and here for the same reason. So can you just bring her in and wait like everyone else.
Whoah! Did she really just say that? At this moment I am in a state of shock. I am blown away by how rude and insensitive this lady has just been. I walk out of the office on the verge of tears and trembling like a leaf because I am now really angry. I'm angry because this is my daughter. My daughter that was born way too early. My daughter that has spent the first four months of her life fighting and trying to stay healthy. My daughter that I have been able to keep "illness free" for the first month we have been home. My daughter that I will do anything for even if it makes other people uncomfortable. I go to the car, get Daddy and Morgan Kate and head back to the office. I walk inside, approach the window and then my "Momma bear claws" come out. Here is the last snippet:
Me: (As I am handing over my paperwork) Ma'am I realize that there are a lot of premature babies here. However, I need you to realize that my daughter just came home a few weeks ago and we just spent four months in the hospital and I don't really intend on going back. So could you please get us a in a room as soon as possible. Thank you.
Five minutes later we had a room. And I felt empowered.
Other than that small moment in time our appointment went very well. I loved Dr. B. He was great and he was so knowledgeable. He thought that Morgan Kate looked good and was pleased with the amount of oxygen she was on. He told us that we could turn her down some. We are now on the very last setting we have on the oxygen tank. 1/64th of a liter is as low as you can go and we are there. We will try this for a few weeks, then work on taking her off of the oxygen during the day and then if all works out we will take her off completely. He has also prescribed an inhaled steroid for her, much like a breathing treatment. It is to help with any inflammation in the lungs. The only thing he was a little concerned with was her weight. Often times babies with lung issues or those that require oxygen grow a little slower because they are working so hard. We are going to return in two weeks for a weight check and to see how the steroid is working. Morgan Kate also got her synagis injection and is due for her next one in early February.
We have given her two treatments tonight and turned down her oxygen. So far, so good. All of her numbers look great and she is sleepy peacefully. While she is sleeping I think I will too...